Thursday, November 1, 2012

Living With Disabled Children



For this blog I decided to look at the recent problem of children with disabilities and how it affects families in today’s society. Today many families face the difficulty of getting by and being able to support their disabled child. It’s hard for some families that don’t make enough money or have the resources to take care of the child properly. This has been a problem faced for a long time now but since cost of things go up and jobs are harder to find it’s become a harder problem to face. 

            We already know from learning in our social work course that many people and families rely on programs and welfare assistance to get by in life with just the basic essentials. But then image adding thousands of more dollars into that just to take care of one disabled child. Many families do have to face this. Tons of children are born with disabilities or are premature now have a higher chance of survival due to today’s technology, but this also means that there will be more children that are disabled and need to be cared for (Anderson, 2007). This is bad for society because now these mothers or parents potentially have to quit their job so that they can take care of their child, which is important but then society needs to find another person to fill that job. (Stablie, 2012).Also this child won’t be able to get a job for themselves either because of their disability, which in the long run means that more people who have disabled children and aren’t getting the support they need will be putting more strain on the welfare system, “..the needs of children with disabilities [has] evolved.”(Halfon, 2012). 

            When we take a look at this social issue we see that it is affected by a few of the different approaches to social work. It is covered under the economic theory approach and the welfare regimes approach. In the economic approach there is the Keynes idea or fiscal policy that without employment there is no spending and therefore goods can’t be sold. And when we take a look at the welfare regimes approach we see that there’s usually minimal government participation in giving money and more benefits for people, which is important for families that need the extra support.

            So when we take a look at families facing the hardships of life already, then tacking on another expensive problem, that isn’t their fault it becomes very easy to feel pity for them and feel the need to help them out. There should be more social assistance for families living in poverty or on welfare that have kids with serve disabilities, ones where the parent(s) or caregiver can’t hold a job because they need to look after the child, or the child itself can’t ever hold their own job. Even if more social assistance isn’t able to be given out, programs that can help look after these kids and make progress with them and their disability depending on if it can be helped or not. 

By: Chelsea L
 
Anderson, D., Dumont, S., Jacobs, P., & Azzaria, L. (2007). Public health reports. The Personal Costs of Caring for a Child with a Disability: A Review of the Literature, 122(1), 3-16. Retrieved from http://www.jstor.org/stable/20057086

Halfon, N., Houtrow, A., Larson, K., & Newacheck, P. W. (2012). The changing landscape of disability in childhood. The Future of Children, 22(1), 13-42. Retrieved from http://www.jstor.org/stable/41475645

Stabile, M., & Allin, S. (2012). The Economic Costs of Childhood Disability. The Future of Children, 22(1), 65-96. Retrieved from http://www.jstor.org/stable/41475647

15 comments:

  1. I can relate to this on a personal level, I have 2 family members that both have muscular dystrophy. Their mother was a single mom for a very long time, and the grandparents were a huge help over the years. Over time it has become worse and they were permanently put in a wheelchair. This causes a lot of extra expenses that these family members did not have in the first place. You have to take into consideration of multiple trips to Toronto for checkups, the proper machines inside and outside your home to accommodate two wheelchairs, and the right vehicle for transportation. All of these costs add up very quickly and they are not costs that only occur once, you need to spend extra money each year. Both grandparents are retired now, so they are capable of helping with everything, but at one point they were not retired and the home support was not capable of being there because everyone had to work to afford the extra expenses.

    -Kahli (Physical Disabilities Group)

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  3. It is so unfortunate that families have to live in poverty because they can't work since they have to stay at home and take care of their child. I can relate because this person I new, she had to take care of her husband 24/7 and she had a hard time getting money because she couldn't work. The only time she got relived was when a nurse came in to take care of him, but she only got maybe 3 hours 2x a week. This didn't give her enough time to work for a job. I no your focus was on children but it is very much so relatable.

    It's really sad to think about parents having to go through this, and how unfortunate it all has to be for them. It must be very stressful, I cant even imagine. I definitely agree with you when you said it is harder now days because everything is much more expensive. The cost of goods is so expensive now days that even families that don't have children who are disabled cant even afford it.

    Hunter

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  4. Thank you for sharing this post. I also can relate in a different way. A member in my family has ADHD and their parents found it really hard to deal with that child. Although this isn’t a physical disability, it was still very time consuming and stressful paying for medication, and finding groups and activities for that person to be involved in, just so he didn’t fall behind in school and society. It is a constant issue day to day.
    For parents that already have a disadvantage in life i.e. not a good education, not a good paying job with benefits, no car etc. it is almost cheaper for that parent to stay at home and take care of their child, then try working at a minimum wage job, and have a huge medical expense at the end of the month. The options don’t weigh out the benefits causing more dilemma and more hard ache for that family.

    -Meri-Beth *

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  5. Children have been born with disabilities all around the world for a long time, this is nothing recent. I believe that children with special needs are born/given to special and strong people - and most times this can only make the parent/person/family stronger.

    I agree and understand that raising a child with special needs can sometimes be stressful, but I see it to be more of a blessing.

    I have a sister in grade 10 with Spina Bifida - she is in a wheelchair and is paralyzed from the waist down. I also have a brother in grade one who has Down Syndrome. These children are amazing, and even though money can be tight sometimes, it is not money that matters.

    I find it a little harsh to say that "this child won't be able to get a job for themselves either because of their disability"...In our home we strongly support individualism, to reach your highest potential, and to never give up on what you want to do in life or become. I understand that not every child lives in the same supportive environment as my sister and brother do, but it is important to put those positive thoughts and vibes out there, and believe in everyone.

    I also agree that there should be more supports out there for families with children who have disabilities...sometimes respite care and travel grants just are not enough!

    Thanks for the post...

    Meagan (LGBT Group)

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  6. I think that the word disability can be used in many ways. I have a cousin who suffers from low functioning autism. Her parents are divorced and with all of the struggles that a female goes through as she grows up you can imagine the amount of work that needs to be put towards her. Her mother is her "rock", she was able to go back to school supported by the Red Cross and now has a full time job that is to support her and her child. It is a fact that my cousin will never be able to support herself in any way, so she will solely rely on her mother. The child support check that is given to my aunt is very little and barely helps with the amount spent to benefit my cousin. She does not want to apply for any government help because of all of the "hoops" you have to jump through. It is very expensive having a child with disabilities but in the end, parents just want to have what's best for them.
    -Alannah (Immigrants and Refugees)

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  7. I think living with a disability would be very difficult in itself and no doubt the economic expenses have potentially to be great but when you are given something special I think it is more about watching that individual grow and see what different things they bring into our world.
    I agree that certain disabilities may inhibit one getting a job but many individuals with disabilities have opportunities to do jobs and increasingly you see people with different disabilities and limitations working jobs that you or I would apply for.
    I also think we do need to think about what positivity these individuals bring to our lives and embrace the talents and zest for life they bring.
    Thanks

    Kristin*

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  8. I feel that this is discussion really hits home for me because I have a little sister who is in a wheel chair, she was born with spina bifida, and a little brother who has down syndrome. I have also been working with children with disabilities for several years and have a strong bond with the children and their families. The language that is used to describe these children is very sensitive. I had difficulty reading a few parts in this blog. For example "So when we take a look at families facing the hardships of life already, then tacking on another expensive problem” I feel that this is referring to the children with disabilities as a problem. These children may suffer from difficulties but I don't feel it is right to refer to them as a problem. These children are wonderful people who deserve a lot out of life and I do agree that they could get it but more service and funding from the government. There are however, several services available to these children. There is respite service, Ontario Disability, Community Living Algoma, and Children’s Rehabilitation Centre to name a few in Sault Ste. Marie.

    To say that the child would not get a job because of their disability is a very definite sentence. This is not true in a lot of cases. A lot of people with disabilities are able to both have a job and live on their own. It would be nice to have more services to help implement work with people with disabilities. One example of this is a 35 year old lady with down syndrome who works at a law office. The office is very accommodating to her needs and actually has a room in the back where she can take a mid-day nap. There should be more services like this implemented in workplaces. This would allow a chance to live independently in society.

    Britney (LGBT)

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  9. I like how this post ties in with my group (people living in poverty) and how you connected it to many other social issues. As a person living with Cystic Fibrosis, I can see where your post is coming from. It is ridiculously difficult for parents to take care of a sick child than it is for a healthy one. Although drug plans and insurance can cover most of the medication bills, there is still money that has to be paid. The management of a sick child is the main reason a person may have to quit their job, to support their child. They have to keep track of medication, make sure they take it at the right times, drive them to numerous doctor visits, take care of them when they get sick, or even hospitalized. This post made me realize how much work actually goes into caring for a sick child, and I'm so proud of my mother. She has taken care of three children with Cystic Fibrosis, and she's a real trooper. I just wish that being sick wasn't so costly and time consuming.

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  10. 2 of my cousins have muscular dystrophy, and the costs that my aunt and uncle have to pay for appointments, trips, equipment, and other resources are ridiculously high. My cousins themselves, who are 18 and 17 respectively, also want to be able to attend college and have a job, but they are unable to because of their disability and the fact that they are in wheelchairs. My aunt and uncle both work 2 jobs in order to be able to support their family, as the resources from the government just aren't enough to support just 1 child with a disability.

    Jessica

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  11. I look up to every parent with a disabled child because of the incredible sacrifices they make on a daily bases to provide for their child. If having a new born baby isn't enough, many parents have a babies that have disabilities. Having a child with disabilities requires 24 hour care to ensure they are safe and watched over. But where does work come into play? I know many families with disabled children and recognize the financial struggle they go through. Many are not able to work with having the 7 days a week job of caring for their child with special
    needs. I also agree with many of the comments on this blog stating that their should be more programs available to families with disabled children. I think these program would help out a lot of families with the care for the disabled child during the day making the parents able to go to work to support their family.

    Lindsay

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  12. It is sad and hard for parents with disabled children and for that I envy them. To go through everything that they have to is extremely hard but they have the patience and love to do it. I read once that most parents try to put their child up for adoption if he or she suffers from a disability, and to me that is not right. If you are a parent you love and care for your children no matter what they look like, how smart they are etc.

    - Alyssa

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  13. I can relate to this with a younger brother who is partially autistic, my older brother strugles to get by. My older brother has full custody of my youngest brother who is ten. He works full time to provide the basics for our youngest brother. I believe there isnt much support for him. Took forever to get my youngest brother into a special school and as for income because my brother works, they wont help him. My third brother and I do whatever we can for them. It shouldnt be like this people raising children with disabilities shouldnt struggle to get by. There should be more programs esp. financial help for these people raising children with disabilities. These children shouldnt be living in poverty ! To sum this up, my older brother is a hero in my eyes and my youngest brother well I am glad theres still a smile on his face..

    Sheri

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  14. Although I cannot relate this to my life or anyone in my family, it really amazes me by all of the comments and stories shared from this post. Many people are blessed with brothers, sisters or family members with a disability from what I have read or can relate this post to people in their lives. Although money can be tight, people are blessed to have these people in their lives. People are blessed to have everyone in their lives, there is no difference in comparison if they have a disability or not we are all equal and everyone is a gift to one another. If a family member is sick with cancer as an example, we never look at money as being a problem because we are trying to save a life. It should be the exact same with disabled people, it does not matter about the money, people are just trying to meet the needs for them to be able to live their everyday lives (whether it be a wheel chair)- just so a life can be saved and they can live their live to the fullest. When it comes to work I think disabled people are able to work- due to their circumstances and qualifications. People just need to give them a chance because are blessed by all of these people around us.

    - Alysha

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